LIPOSORBER® Educational Materials, Guides, and Patient Resources
As you consider or continue your LIPOSORBER® treatment journey, we are dedicated to providing you and your caregivers with trusted, easy-to-access educational materials and support. We have gathered comprehensive resources for both Familial Hypercholesterolemia (FH) and Focal Segmental Glomerulosclerosis (FSGS) patients, as well as essential links to supportive organizations.
Videos: Get Started and Know What to Expect
What to Expect When Starting LIPOSORBER Treatment
Pediatric What to Expect When Starting LIPOSORBER Treatment
How LIPOSORBER Works
Mary N. – Familial Hypercholesterolemia (FH) Patient Story
FH Patient Journey
Educational Materials
FH and Lp(a) Materials
These guides and materials are designed specifically to support individuals and families managing FH and elevated Lipoprotein(a) [Lp(a)]. These are crucial FH patient resources for navigating your condition and treatment.
- FH/Lp(a) Patient Guide
- FH, Lp(a) Patient Guide – Spanish (ES)
- FH Patient Guide French Canadian (FR)
- FH Patient Journey Infographic
- FH Patient Adherence Guide
- Nutrition Guidance for FH
- FH Lp(a) Clinical brochure
- 2025 LIPOSORBER LA-15 Instructions For Use (FH)
- Lp(a): A Toolkit for Health Care Professionals – American Heart Association
FSGS Materials
Find the necessary FSGS treatment support and information to understand and manage Primary Focal Segmental Glomerulosclerosis.
Clinical Publications
Stay informed on the latest research and evidence.
Supporting Organizations
FH/Lp(a) Organizations
- Family Heart Foundation – familyheart.org: The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated Lipoprotein(a). Through research, advocacy, and education they drive change, and empower families to navigate their own health.
- Care Navigation Center – familyheart.org: Connect with a Care Navigator who can provide free assistance to those impacted by high cholesterol, familial hypercholesterolemia (FH), elevated Lipoprotein(a), also known as Lp(a), and cardiovascular disease, including families and caregivers.
- American Heart Association – heart.org: For nearly 100 years, the American Heart Association has been fighting heart disease and stroke and helping families and communities thrive.
FSGS / Kidney Organizations
- NephCure – nephcure.org: NephCure empowers people with rare, protein-spilling kidney disease (such as FSGS) to take charge of their health, while leading the revolution in research, new treatments, and care.
- Kidney Health Gateway – kidneyhealthgateway.com: Brought to you by NephCure, Kidney Health Gateway is your resource for helping you find clinical trials and specialists in your area.
- National Kidney Foundation – kidney.org: The National Kidney Foundation is a lifeline for all people affected by kidney disease, focusing on the whole patient through the lens of kidney health.
- Kidney Solutions – kidneysolutions.org: Kidney Solutions is facilitated by transplant professionals, recipients and living donors who desire to assist patients in finding a living kidney donor and help them and their families through the pre- and post transplant process.
Key Takeaways for Navigating Your LIPOSORBER® Resources
For quick reference, here are the most important ways you can utilize these LIPOSORBER educational materials:
- Downloadable Guides: Comprehensive Patient Guides are available in English and Spanish for both FH and FSGS to help you fully understand your condition and treatment.
- Adherence Support: Use the FH Patient Adherence Guide and the “What to Expect” videos to confidently manage your treatment schedule.
- Nutrition: Specialized nutrition guidance is available for both FH and FSGS patients to complement your overall health strategy.
- Supporting Organizations: Connect with our trusted partners like the Family Heart Foundation and NephCure for community, advocacy, and additional support.